AJ’s Army

Amelia Jane was diagnosed with Leigh’s syndrome (SURF1) in December 2024. This a nightmare of a disease that includes regressions that will slowly impact her. She could lose all her abilities including being able to sit up, eat, babble, even hold her head up. But it is with amazing news we have learned that there is a gene therapy in the works as you are reading this! With your help we could be MONTHS away from clinical trials. Right now we need to raise money to reach the finish line of a CURE. Funding will be used for a formal toxicology report to determine it is safe for humans, and for the drug to be manufactured. With that being said, let’s do this, let’s Cure not only AJ but all the other kids and future babies. Let’s put a stop to this and make history. If you are not able to donate we ask that you share this on every platform possible, lets make this world wide. AJ’s ready for the fight, are you too?