AJ’s Army

Imagine being told your sweet 10-month-old only has a few years to live—and there is no cure. That was our reality not long ago.

In December 2024, our daughter Amelia Jane was diagnosed with Leigh’s syndrome (SURF1), a terminal mitochondrial disease. This cruel disease slowly takes away the abilities children gain—walking, crawling, sitting up, swallowing—until it takes everything.

Time is not on our side. This isn’t a matter of if it will happen… it will. But there is hope.

There is a gene therapy currently in development—right now, as you’re reading this—that could change everything. With enough funding, we could be months away from clinical trials.

The only thing standing between our daughter and a cure is $3 million. It’s a terrifying number—but we refuse to let money be the reason our child, or any child, doesn’t get a chance at life. These funds will be used for a formal toxicology report and for manufacturing the drug so it can be given to children like AJ.

This isn’t just about saving our little girl. It’s about curing Leigh’s syndrome for all children—now and in the future.

If you can donate, we are endlessly grateful.
If you can’t, please share this everywhere.
Every share matters.
Every voice counts.
Let’s make this worldwide.
Let’s make history.

AJ is ready for the fight. Are you? 🫶🏼