Strumming For A Cure
Ukulele Benefit Concert 2026 for
TEAM LILA
Kids Advancing Research For Kids Through A Night Of Music
The Purpose
The Warwick Valley Ukulele Club has a history of advocacy for research and giving back to the community. This year, the Ukulele Club has set its sights on helping raise awareness and funds for the identification of therapeutic treatments and a potential cure for ECHS1 Deficiency with
Team Lila & CURE MITO Foundation.
The Team
Team Lila holds a special place in the hearts of both club and community members - Lila was an 11-year-old Warwick Valley student who passed away in 2025 from ECHS1 Deficiency / Leigh Syndrome.
The team was formed in order to take action and do more after receiving Lila's diagnosis. Today, it continues in her honor and legacy and has grown to include the amazing number of lives she touched and people she attracted with her magnetism during her short time with us.
About Lila
Lila was a loving 11-year-old who enjoyed life and had an infectious smile. She was lover of art and music, and one of her proudest moments during her short life was performing in the elementary school concert as a singer and pianist. She changed the worldview of nearly everyone she met, and to know her was to love her. Lila led with perseverance, and never let her diagnosis define her or get in the way of living her life to the fullest...and she inspired us all as she continued to do it with a smile. She will be forever imprinted on the many lives and hearts she filled with her love.
ECHS1 Deficiency / Leigh Syndrome
Leigh syndrome is a rare mitochondrial, metabolic, neurodegenerative and debilitating disease that strips children of their abilities as it affects the body's energy production mechanisms. Often, those who could walk, talk, and eat independently lose these skills shortly after receiving a diagnosis and have a reduced life expectancy. Many do not survive beyond childhood.
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